Thursday, January 14, 2010

Leukemia and Non-Hodgkins Lymphoma Study in Flower Mound (New info added)

The Texas Department of Heath Services is conducting a study on a possible cluster of Leukemia and Non-Hodgkins Lymphoma in the 75022 and 75028 zip code. The study was to be for children only and is for the period from 1998 to 2007. We received an e-mail today from the TDHS saying that they are now including adults in the study. Here are is what they will be looking at:

Childhood leukemia subtypes
Total leukemia subtypes
Non-Hodgkin’s lymphoma

We have received many e-mails and spoke with families dealing with this terrible disease. In the e-mail from the TDHS, we were told they are unable to extend the study period to 2009 because they must have complete statewide data before we can analyze data for that year. They will be working with the parents to verify the more recent cases. Even if you have been diagnosed after 2007, it is important that you contact TDHS.


Again, if you or your child has had Leukemia or been recently diagnosed with Leukemia, please immediately. The study is being done out of Austin.
Here is the contact information:
Allison Lowrey, Assistant Press Officer 512-458-7111 Ext. 2213

Brenda J. Mokry, Epidemiologist
Texas Cancer Registry
Cancer Epidemiology and Surveillance Branch MC 1928
Texas Department of State Health Services
PO Box 149347
Austin, TX 78714-9347

Phone: 512-458-7111 Ext. 3606
Toll free: 1-800-252-8059

Other TDHS info:
http://www.dshs.state.tx.us/contact.shtm

NEW INFO:
Terry Nordbrock, MLS, MPH
Executive Director
National Disease Clusters Alliance
http://www.clusteralliance.org/
California Office
4758 Auburn Blvd Suite B Sacramento, California 95841
Arizona/Business Office 2602 E Helen Street Tucson AZ 85716
1-877-676-NDCA (6322) toll-free voice-mail
1-520-795-7228 phone/fax

You may contact us at fmcaudgroup@yahoo.com if you want to be in touch with others dealing with Leukemia in this area.

If you are concerned about what is going on in the 75022 and 75028 and want to voice your concern, we have some contacts for you below.
EPA Region 6
http://www.epa.gov/earth1r6/6pd/comentpd2.htm

TCEQ
http://www.tceq.state.tx.us/about/directory/

Jody Smith: Flower Mound Mayor
mayor@flower-mound.com

Flower Mound Council Members who voted against the temporary suspension.
Steve Dixon place1@flower-mound.com
Mike Wallace place3@flower-mound.com
Jean Levenick place4@flower-mound.com

Contact the Lewisville ISD Board Members about the health concern since they signed leases for almost every property they own.
Lewisville ISD Board members
http://www.lisd.net/info/board/boardmembers.html

Kay Bailey Hutchison: US Senator http://hutchison.senate.gov/contact.cfm

John Cornyn: US Senator http://cornyn.senate.gov/public/index.cfm?p=ContactForm

Chris Harris: Texas State Senator
http://www.senate.state.tx.us/75r/senate/members/dist9/dist9.htm#email

Tan Parker: Texas State Senator
http://www.house.state.tx.us/members/email.php?dist=63&rep=tan.parker

5 comments:

TXsharon said...

In the 2nd paragraph, the link should say TDHS. =) I typo all the time.

Another Concerned Citizen said...

Thanks, after 3 hours of sleep, I needed a proof reader this morning. I also added direct contact info that was sent to me by one of the adults with Leukemia. They said the study will be done out of Austin. Thanks for posting the info and catching the typo.

TXsharon said...

A comment on my blog is asking for the daycare center name. I hope they will come here but just in case...

Another Concerned Citizen said...

Not sure but am trying to get that information for you. Keep you posted.

Another Concerned Citizen said...

The Daycare’s in question are The Children’s Courtyard and Primrose. Both are in the Wellington area.I hope that helps. Also, News 8 was out again interviewing a parent again today. They will be reporting an update again tonight.